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2010 AWARDS
Hilton Park Lane, London



     15th April 2010
Paul Grant / Daniel Ghinn
VIDEO: What does healthcare engagement mean to you?

     http://www.youtube.com/watch?v=Kj-8fdMqRRY




             Healthcare engagement in a digital world
ANOTHER AWARD?
• Recognise     more than just creative work or buzz
• ‘Engaging    content’ versus actual engagement
• Real engagement is good for “us”, but importantly can bring real
 difference to healthcare and to patients
• Opportunity      for us and the industry to learn:
  •   What can we all take away from best practices?
  •   Humility of winners - showing a willingness to learn, yet they themselves
      are leading
  •   Goal to see improvements in real engagement in 2010

                          Healthcare engagement in a digital world
Determine




                                            Deploy                         Define




DISCOVERY                                                      Discover
Creation Healthcare discovery
 methodology for informed                  Develop                         Direct
    engagement strategy

                                                                 Design




                    Healthcare engagement in a digital world
JUDGING PROCESS
   Healthcare engagement in a digital world
NOMINATIONS
• Predominantly      received via Twitter
• Some   verbal
• Some   via email
• >50   different projects or people for consideration




                        Healthcare engagement in a digital world
METHODOLOGY
• Pub-chat    opinion awards were the model initially
• The   process consisted of;
 •   Nominations sent to international judges panel for initial review and
     opinion sharing (Spain, Mexico, Australia, USA, UK)
 •   Criteria and weighting based on actual engagement (patients, HCPs,
     marketing, tangible outcome, beneficial to human healthcare)
 •   Short-listed entrants
 •   Interviews with finalists (objectives and outcomes)
 •   Awards announced

                         Healthcare engagement in a digital world
HES AWARD WINNERS
    Healthcare engagement in a digital world
JOHNSON &
JOHNSON HEALTH
  CHANNEL ON
    YOUTUBE
Best Engagement Through Video




                   Healthcare engagement in a digital world
OVERVIEW
• Over    1.5 million views since 2008
• Proactive    engagement, interacting with comments:
  •   Puts a human face on the corporation and goes to core values of
      connecting with the customer, engaging and having 1-to-1 dialogue
• 90-95%     videos are not product specific
• Good     source of objective healthcare information
• Let’s   take a closer look...


                         Healthcare engagement in a digital world
Healthcare engagement in a digital world
WHAT WE LIKE
• Actually   engaging proactively
• Honest and open stance on what is and isn’t within the
 control of the company - plain English legalities
• Consistency      in moderation of conversation;
  •   Allowing controversial content, but drawing the line on off-topic,
      obscene, or inappropriate behaviour
• Reaching
         a population where over 50% are women with ages
 between 40-55 - not that this is a goal

                          Healthcare engagement in a digital world
WHAT WE LIKE
• Reputational     ROI;
  •   Objective evidence that a lot of people have seen these videos
  •   Subjective evidence that people are appreciating it, and that appreciation
      is rolling over to appreciation of the company
• Just   one part of J&J’s engagement strategy
• Respondingto comments, and keeping a balance with when
 and whether to signpost information
  •   Not providing medical advice
• Historical   evidence suggests fear of AEs is a ‘red herring’
                          Healthcare engagement in a digital world
IN THEIR WORDS
• Allowing   the community to publish controversial content;
     “It’s an open forum, except for inappropriate or off-topic
 comments... and what I’ve found is that the community corrects
   itself. If somebody says, ‘bipolar doesn’t exist, you’re all crazy!’
  then somebody will say ‘yes it does, and if you had a loved one
              in this situation then you would understand’.”

          Rob Halper, Director of Video Communication for Johnson & Johnson




                        Healthcare engagement in a digital world
IN THEIR WORDS
• Rather   than talking about products;
  “I’m more interested in telling the good story about patients
     who are coping with a disorder, or doing things to make
 themselves more healthy, and if people become more aware of
  that disease state and want to look into it more, great. And if
   they are just interested in the information that’s great too.”

            Rob Halper, Director of Video Communication for Johnson & Johnson




                          Healthcare engagement in a digital world
THEIR ADVICE
• Keep    the content fresh
• Monitor  comments every day, all day long. Views, what’s being
  said, who’s subscribing.
• It’s
     important to be really open & honest. If you make a
  mistake, or offend somebody, take responsibility about it.
• Don’t   try to sneak in a commercial message without being
  transparent about it. If there’s a product video, don’t pretend
  that it’s an objective video. People won’t be fooled.


                      Healthcare engagement in a digital world
OBSERVATIONS
• Allowing   comments - a brave new world
• The   community will self-regulate to a large extent
• Legally   distance from 3rd party content
• Lo-cost   channels can be highly engaging
• Content    is king
• Openness     and transparency are the best tenets



                       Healthcare engagement in a digital world
RELEVANT LINKS
• http://creationinteractive.com/articles/best-engagement-
 through-video-award/
• http://www.youtube.com/user/JNJhealth

• http://jnjbtw.com/




                       Healthcare engagement in a digital world
TUDIABETES
Best Patient Community




               Healthcare engagement in a digital world
OVERVIEW
• Providing    a platform for people touched by diabetes, to
 connect
• 20,000    members in two language communities
• Strongawareness campaigns using social networks and media
 which transcends language or culture
  •   Video, photos, creative expression
• Partnership     with industry
• Let’s   take a closer look...

                         Healthcare engagement in a digital world
Healthcare engagement in a digital world
WHAT WE LIKE
• Community   is centred on patients and caregivers
• Helping to overcome ‘closet condition’ and provide a safe
 place for support and openness
• Clearabout complimenting interactions with the patient’s
 medical team - never a substitute, yet some types of support
 through the community simply could not be offered by even
 the most committed medical team



                    Healthcare engagement in a digital world
CASE STUDY
•   Founder was diagnosed with Type II Diabetes, and seemed like a
    typical case.
•   Treated by a general practitioner with strong relationship and history,
    but not a specialist - failing treatment
•   Eventually referred to an endocrinologist, diagnosed as Type I through
    two different tests
•   Many members of the community are in a similar situation when they
    join. Treatment is not working, GP trying many things.
•   Community identifies these cases and can advise the patient to speak
    with the GP about the two tests - sometimes makes a big difference

                         Healthcare engagement in a digital world
WHAT WE LIKE
• Toe   in the water on community participative projects;
 •   Testing blood sugar glucose at the same time
 •   1400 people sharing a personal, individual moment
 •   People respectfully encouraging high/low value patients to treat as soon
     as possible, or asking why they thought it was this way.
 •   Self-supporting
 •   A big success!
• Next   step was to take it outside the community...


                        Healthcare engagement in a digital world
CASE STUDY
• November  2009 “The Big Blue Test”, participation project with
 other Diabetes patient groups;
 •   Goal to break into trending topics on Twitter
 •   Dimension of physical activity;
     •   Test, exercise for 14 minutes, test
 •   80% of 2000 participants reported a drop of 20 points
 •   Shocked to discover or rediscover this was possible
 •   A powerful community moment, group learning through shared
     experience

                           Healthcare engagement in a digital world
IN THEIR WORDS
• Support   empowers patients in times of emotional strain
  “We have a lot of testimonials from people who describe specifically how
  they’ve been able to reduce their haemoglobin A1C number from a higher
    place to a number in the 6’s or sometimes in the 5’s – that’s practically
 normal, non-diabetic A1C... by simply participating with others with diabetes
   who are doing things differently, then going back and discussing with their
           doctors and incorporating new things into their therapy.”

                     Manny Hernandez, Founder of TuDiabetes




                       Healthcare engagement in a digital world
WHAT WE LIKE
• Started
      using other channels with a goal to increase
 membership...
  •   Realised that different people need different channels, it is not about
      having all people using all channels.
• Creating    contests and syndicating through other channels
• Integrating    online content with offline initiatives
  •   Diabetes poetry book, 40 members and 100 submissions
  •   Using 6” x 4” postcards in surgeries to grow online members


                          Healthcare engagement in a digital world
CASE STUDY
• October  2009 “Making sense of Diabetes”, participation
 project sponsored by Boehringer Ingelheim Pharmaceuticals;
• Eachweek of October dedicated to a different sense. “Life
 with Diabetes through that sense”
• Winners   each week
• Compilation   video in time for World Diabetes Day




                     Healthcare engagement in a digital world
http://www.youtube.com/watch?v=29bng1H4XTs




           Healthcare engagement in a digital world
THEIR ADVICE
• It’s
    critical to have at the helm of the community - running the
  community - people that are directly impacted by the condition.
  •   The kind of passion you have when you live with it on a daily basis goes a
      long way.
• You  need to nurture a community, and make sure it stays on
  track. And you need to define what ‘on track’ means for you.
  •   Define what the guiding principles are for your community
  •   It helps if you have some clear rules that you are expecting people to
      follow


                          Healthcare engagement in a digital world
THEIR ADVICE
• Listen
       to people who are not engaged in the community and
 incorporate their feedback E.g. ‘Sign-up’ button
  “Without your members, your community is meaningless, pointless. It’s
        important to listen to what your members have to say.”
• People  in both communities take time to manage day to day
 activities – members moderating members for approval
 before joining, to keep spammers at bay.;
   “...we need to keep an eye on the conversation to make sure that the
   spirit and the overall environment in the community stays true to the
             values that we have articulated for the community.”

                      Healthcare engagement in a digital world
OBSERVATIONS
• Evolve    - the vision may not be the reality
• Health    is controversial, let the conversations take place;
  •   Foster the conversations that need to happen
  •   Healthcare reform, politics, religion - respect and flow
  •   Not just moderating, but highlighting the positive
• Use ‘Lo-tech’ and
                  offline creative ideas, facilitated through
 social networks and participative sharing
• Allow    people to engage where it is most convenient for them

                          Healthcare engagement in a digital world
RELEVANT LINKS
• http://creationinteractive.com/articles/best-patient-community-
 award/
• http://www.tudiabetes.org/

• http://www.estudiabetes.org/

• http://www.tudiabetes.org/notes/Making_Sense_of_Diabetes

• http://www.tudiabetes.org/profiles/blogs/world-diabetes-
 day-2009-1


                    Healthcare engagement in a digital world
SKCIN’S
COMPUTERTAN
 CAMPAIGN
Best health issue awareness
         campaign




                  Healthcare engagement in a digital world
OVERVIEW
• “Don’t    be fooled. UV exposure can kill”
  •   A simple campaign about raising awareness
• Presented     with ‘state-of-the-art’ components
  •   iPhone application, web application, supporting products and e-
      commerce facility, viral sharing tools, seeded through bloggers
  •   Big traditional media support, 25,000 free tanning session pamphlets, 50
      digital cross-tracks, 1000 London Taxi screens
  •   More than 1.5 million visitors
• Let’s   take a closer look...
                          Healthcare engagement in a digital world
Healthcare engagement in a digital world
Healthcare engagement in a digital world
WHAT WE LIKE
• More people (+35%) die of skin cancer in the UK than in
 Australia - an awareness issue that needs solving
• Thinking
         about engagement from a viral point of view - the
 mechanism is ‘spoof ’
• Actually
        principally hooks the target audience and reveals the
 message after they have fully engaged
• Alwaysa challenge to get a message to the younger
 generation - meets them in their domain


                   Healthcare engagement in a digital world
IN THEIR WORDS
  “I think we’ve learned that the desire for UV tanning is even more prevalent
than we’d anticipated, and clearly the problem doesn’t exist only in this country.
Because of the nature of the world wide web, it’s opened up the campaign to a
 further 180 countries, from which we’ve had a huge media response in those
     countries. It makes you realise that on a global scale it’s a huge problem.
    In particular the campaign was aimed at a younger audience really, and
                 teenagers, who use and interact with the web.
      They seem to be less knowledgeable or concerned about cancer in
       general. ...and are really unaware of the dangers of UV tanning.”

     Kathryn Clifford, Marketing & Creative, Skcin (The Karen Clifford Skin Cancer Charity)



                            Healthcare engagement in a digital world
THEIR ADVICE
• Utilising   spoof is a great way to do it;
   “It achieved a lot of press coverage. We were very lucky because the
      creative idea was the brainchild of McCann Erickson. We were
         extremely lucky to have had them work with us on this.”
• Utilising
          the web is a great way of doing it – far more cost-
 effective. And it’s quantifiable; you know how many people
 have got your message. And it’s the way to go when you’re
 trying to reach a younger audience.



                        Healthcare engagement in a digital world
OBSERVATIONS
• The
    Internet has no boundaries - any campaign is a global
 campaign
• Right   message, right platform, right people
• Attention
          to detail and investment in multiple channels gives
 the message more ‘authenticity’
•A   big idea is a winning idea - traditional media still love a story
• Engagement     can be about how ‘bought in’ the audience is


                       Healthcare engagement in a digital world
RELEVANT LINKS
• http://creationinteractive.com/articles/best-health-issue-
 awareness-campaign-award/
• http://computertan.com/

• http://phobos.apple.com/WebObjects/MZStore.woa/wa/
 viewSoftware?id=305194397&mt=8
• http://www.skcin.org/skcin_media_coverage.php

• http://www.skcin.org/media/Computertan%20Case
 %20Study.pdf

                     Healthcare engagement in a digital world
GET REAL. GET A
 PRESCRIPTION
Best integrated engagement
          strategy




                 Healthcare engagement in a digital world
OVERVIEW
• Anti-counterfeit     medicine campaign
• Stakeholder     engagement collaboration;
  •   Pfizer, UK government regulator the MHRA, the Royal Pharmaceutical
      Society of Great Britain (RPSGB), and patient groups such as HEART
      UK and The Patients Association
• Full   channel integration:
  •   Cinema, TV, Print, Outdoor, online, PPC, social media sharing - goal of
      affecting and demonstrating change in online behaviour
• Let’s   take a closer look...
                          Healthcare engagement in a digital world
Healthcare engagement in a digital world
WHAT WE LIKE
•   Tackling an issue as a consortium and therefore reaching
    stakeholders across every area of healthcare - educating even
    professionals
•   A research informed initiative - evidence justified the approach
•   Phased approach with continuous improvement through
    discovery - minor tweaks with major benefits
•   Innovation within guidelines and continuing to use channels that
    have constraints - such as paid online advertising
•   Syndicated by police, NHS Trusts, Pharmacy chains

                       Healthcare engagement in a digital world
WHAT WE LIKE
•   Mechanisms for gathering evidence of a tangible outcome
    •   Sharing analytics between stakeholders, building measurable user journey across
        multiple domains and stakeholders
•   Providing opportunities for two-way engagement through appropriate
    channels and partners
•   Sign-posting patients back into the legitimate healthcare system for
    correct care
•   85% of people intercepted by therapy specific pages said that they
    would change the way they buy medicine online, based on their new
    understanding of the safety issues around unregistered online sources

                             Healthcare engagement in a digital world
IN THEIR WORDS
• Fighting   the war on counterfeit medicine at the front line;
    “Working online itself was an important element, as evidence shows
    that a high proportion of illicit medicine purchases are conducted via
  the web, and through the web site we were able to direct consumers in
   the way we set out to, explain more about the campaign, and employ a
     variety of strategies to try and intervene directly in that online illicit
          ‘patient journey’ and ultimately try and change behaviour.”

          Andrew Widger, Associate Director, Communications UK/Europe at Pfizer




                          Healthcare engagement in a digital world
IN THEIR WORDS
• Evidence   at every point of the campaign;
   “It should be remembered that while this campaign seems simple – a
  ’shocking’ visual representation of the dangers, as a hook to encourage
  people to find out more – it is firmly rooted in evidence from a variety
   of sources, and validated by in-house medical colleagues, legal counsel,
   and partner regulatory organisations. This provided an important basis
   for the campaign to push boundaries, in terms of memorable creative
    and the use of new channels and techniques, while being assured that
    any criticism could be met with robust, evidence based justification.”

         Andrew Widger, Associate Director, Communications UK/Europe at Pfizer

                         Healthcare engagement in a digital world
THEIR ADVICE
•   Be brave;
    •   If a message is worth delivering, it is worth investing in the time to be creative
•   Be prepared;
    •   If you want people to take notice, and discuss your campaign and its messages, you need to
        be prepared to let them do so, and you need to be ready to offer further guidance, or
        respond to enquiries, or offer support to people and groups who want to join in - for
        example, we didn't expect a local police force to adopt our materials.
•   Be ‘future-proof ’;
    •   Develop resources that can grow, change, or be repurposed as your campaign gains
        momentum. For example, our web assets have all been designed for future growth; while the
        video advert has been created in such a way that it can quickly be translated and repurposed
        for other markets. Consequently assets from the Get Real campaign have reached audiences
        in the Netherlands and Israel to date, and plans exist for use in other countries.


                                   Healthcare engagement in a digital world
OBSERVATIONS
• Research   can make budget expenditure more focused
• Measure    everything, but know what the questions are
• Do not ‘set and forget’. Continuous improvement increases
 effectiveness over time.
• Be flexible, if a message is noteworthy the community can
 ‘run-away’ with it on their own terms
• Partnershipsstrengthen the transparency and intent of the
 cause, and create momentum through other stakeholders

                      Healthcare engagement in a digital world
RELEVANT LINKS
• http://creationinteractive.com/articles/best-integrated-
 engagement-strategy-award/
• http://realdanger.co.uk

• http://www.youtube.com/pfizeruk

• www.mhra.gov.uk/buy-medicines-online

• www.internetpharmacylogo.org




                     Healthcare engagement in a digital world
MAYO CLINIC
 Best hospital or clinic




                 Healthcare engagement in a digital world
OVERVIEW
• “The    needs of the patient come first”
• Treating    more than 500,000 patients per year
• Reaching
         beyond physical clinic locations using a mix of old
 and new channels
  •   Radio, streaming podcasts, video, Twitter, Facebook, Blogs, video FAQs,
      private online groups, and more.
  •   Using digital channels to increase engagement internally
• Let’s   take a closer look...

                          Healthcare engagement in a digital world
Healthcare engagement in a digital world
WHAT WE LIKE
• They       build on what is already going on and extend it;
 •   “MacGyver-ize” - taking old assets and moving into new channels
     •   Provided radio content for more than 20 years
     •   Started moving it into podcast format around 2005
     •   Also lifted audio from TV interviews and other video collateral
     •   Evolved to two-way engagement through Twitter and email
         •   Questions come in (#mayoradio) and experts reply on the
             MedicalEdge Weekend radio show - streamed live and OnDemand
 •   Information is traveling further than the reach of their clinics

                          Healthcare engagement in a digital world
Healthcare engagement in a digital world
CASE STUDY
• Rare   diseases - gaps in knowledge or support
• Postural   Orthostatic Tachycardia Syndrome (POTS)
  •   Affects teenage girls - sudden change in heart function
  •   Often misdiagnosed as stress by doctors
  •   Received letters from out of area people who have heard the podcast
      and travelled to the clinic, after finally finding someone who recognises
      the condition
  •   Heard more than 20,000 times



                          Healthcare engagement in a digital world
IN THEIR WORDS
• Publishing   plays a clear role in online engagement
    “It is really helpful when you have some of world’s leading
  experts on a particular condition – if you can have them talk
  for 10 or 20 minutes on that topic – that is highly valuable to
   patients or their families, who are looking for the kind of in-
   depth information that previously was not possible to get.”

          Lee Aase, Manager for Syndication & Social Media, Mayo Clinic




                       Healthcare engagement in a digital world
CASE STUDY
• Piloting
        a digital FAQ / video FAQ for first-time patients in the
 Dental Specialty Area
• Physicians
           spending a lot of time with patients in the first visit
 going over the same information
  •   Video content provided prior to first visit
  •   Achieving more specialist care on that first visit
  •   Assessing patient and provider satisfaction
  •   Secret Facebook groups with a medical staff person, where patients can
      ask questions and find mutual support or feedback

                          Healthcare engagement in a digital world
WHAT WE LIKE
•   Thinking about engagement holistically, both internally and externally
•   Looking at how to create strategies for collaboration using social
    media, within the organisation
    •   E.g. Internal blog about corporate strategic plan;
        • Employees engage on how to apply strategic themes (core values) to their
          role and work
        • Look for and appoint leaders for the strategic themes
        • Allow groups to self-organise

•   Teams can be assembled around patients better


                              Healthcare engagement in a digital world
THEIR ADVICE
•   Develop a personal familiarity with social media before applying it in
    the workplace;
     “Take the time to understand the ‘ways of the world’ of social media so that
         you don’t end up with faux-pas that would be embarrassing to your
                         organisation and hinder adoption.”
•   Start with what you have, and look for ways to gradually take steps
    towards better engagement, one thing at a time. Rather than hiring
    lots of people to ‘blast through’. Inefficient if a blast approach;
    “If you have significant expenses involved, you will be looking for the payback
     too soon, and will act in ways that are not in keeping with social media.You
                           will end up being too ‘hard sell’.”

                           Healthcare engagement in a digital world
OBSERVATIONS
• Start   small, continuous improvement through discovery
• Develop  internal expertise in social media so that you can
 train the subject matter experts to engage effectively.
  •   Find the evangelists.
  •   Then empower your people.
• Find   ways to keep costs down – don’t build up big overheads.
• Shoot a video, rather than a blog post – people will see the
 real doctor, which is much more reassuring (and credible).

                              Healthcare engagement in a digital world
RELEVANT LINKS
• http://creationinteractive.com/articles/best-hospital-or-clinic-
 award/
• http://www.mayoclinic.com/health/stress-management/
 MY00435/TAB=expertblog
• http://radio.mayoclinic.org/

• http://www.facebook.com/MayoClinic

• http://www.youtube.com/user/mayoclinic



                     Healthcare engagement in a digital world
PATIENTSLIKEME
  Changing Healthcare




                Healthcare engagement in a digital world
OVERVIEW
• 50,000    patient members
  •   Capturing 10% of newly-diagnosed MS patients in the US
  •   Capturing 20% of newly-diagnosed ALS patients in the US
• Putting   the patient at the centre of healthcare
• Providing    tools for patient to patient dialogue
• Observational     study data for the benefit of industry
• Let’s   take a closer look...


                         Healthcare engagement in a digital world
Healthcare engagement in a digital world
WHAT WE LIKE
• Engagement      strategy most likely to change healthcare
  •   21% of patients changed physician as a result of the community
• Helping    people with rare diseases find others;
  •   85% of respondents said that they felt better about themselves because
      of recognition from others that their condition is real.
• Givinginformation that the patient needs, not what the
 healthcare industry defines as being the right information
• Comparative      analysis to find similarities to learn from

                         Healthcare engagement in a digital world
WHAT WE LIKE
• Trying
       to understand and define what ‘patient-centric’
 medicine actually could mean
  •   Privacy and openness
• Started    with what they had to give;
  •   Sharing their life-experience and research
• Discovery
          model for continuous improvement - learning
 about how different therapeutic areas have different
 measurement needs; It’s not one size fits all


                          Healthcare engagement in a digital world
WHAT WE LIKE
• Making      a difference to patients
  •   An open framework for patients to measure on health
  •   Experimentation;
      •   ‘Mood’ community detailed scale did not measure mania with the
          sensitivity that was needed - evolutionary fixes
    “This isn’t a controlled clinical trial, this is an evolutionary platform
  that’s continuously trying to measure better and better, human health.”
• Aligning     interests of patients with interests of industry (UCB)


                          Healthcare engagement in a digital world
CASE STUDY
•   Fibromyalgia community launched at end of 2008, and has been
    fastest growing community.
    •   Grown to over 10,000 patients already, 856 new patients in 3 weeks of 2010
•   Added chronic fatigue syndrome to this community in response to
    new science information about XMRV virus;
    •   Scientists found that XMRV virus is much more common in chronic fatigue
        patients.
        •   Brand new science very quickly deployed into the community
        •   Ability to be part of the quickening and acceleration of science in a
            specific space

                               Healthcare engagement in a digital world
IN THEIR WORDS
• On the philosophy of giving patients tools to discover and
 learn from others;
  “...given where I’m at; everyone else who got to where I am;
  what’s their path so I know the range of outcomes and then
   how do I get there if I wanted to go on the best path that I
  can hope to achieve? What are the interventions, techniques,
      things that can change my quality of life, my outcomes.”

             Ben Heywood, Co-Founder & President, Patientslikeme



                     Healthcare engagement in a digital world
IN THEIR WORDS
• On proving to industry where their observational data sits in
 the evidence spectrum;
  “We look to work in the clinical research space with our data
  and our information. We know there’s a hurdle as a healthcare
 pro or trained expert, to coming to the idea about this info that’s
    collected through shared experiences; ‘wisdom of crowds’.
 We have a long way to go to achieve full acceptance of this data”

             Ben Heywood, Co-Founder & President, Patientslikeme


                     Healthcare engagement in a digital world
THEIR ADVICE
• Health data is individual, so doing something meaningful with it
 is a challenge. It’s not simply about adding IT to healthcare.
• Startby aiming to solve an individual patient’s problem; then
 solving two patients’ problems; before solving the whole
 community’s problems. Otherwise, it becomes too big a
 challenge.




                    Healthcare engagement in a digital world
OBSERVATIONS
• Innovation - by measuring everything there is a wealth of
 intelligence. Make it useful
• Give    to the community
• Start
      with the needs of the community, not the needs of the
 organisation or message
• Continuous    improvement through discovery




                     Healthcare engagement in a digital world
RELEVANT LINKS
• http://creationinteractive.com/articles/changing-healthcare-
 award/
• http://www.patientslikeme.com/

• http://www.patientslikeme.com/als/community

• http://blog.patientslikeme.com/




                     Healthcare engagement in a digital world
LOCAL TO GLOBAL
   Healthcare engagement in a digital world
RECAPPING ’09
• So   what did we see in 2009?
 •   Some good progress in healthcare engagement strategies, as evidenced
     by the nominees and winners of HES Awards
 •   Lots of buzz about social media;
     •   Some regulatory confusion - FDA hearings
     •   Who did what first - does it matter?
     •   Yet, social media is only one piece of the engagement puzzle
     •   An amazing number of social media experts
 “After all is said and done, there is a lot more said than done”

                          Healthcare engagement in a digital world
TIMES ARE A CHANGING
• Privacy   default setting to ‘public’, average person still not very
 aware
• Increasingly ‘long-tail’ of
                       individual touch points and ways to
 experience the informational and networking opportunities of
 the Internet;
  •   So is Facebook a certainty? (Remember FriendsReunited, MySpace?)
  •   YouTube?
  •   Google?
  •   etc

                        Healthcare engagement in a digital world
TRUTHS
• Soif we were seeking to distill some concrete overarching
 concepts:
 •   Change is certain
 •   There is a human appetite for knowledge and information;
 •   There is potentially a value to building intelligence assets
 •   The Internet provides a new way to have community and a sense of
     belonging - and the global population is now embracing it
 •   Sharing and need to participate - Maslow’s hierarchy of needs



                          Healthcare engagement in a digital world
UNIVERSAL NEEDS




  Healthcare engagement in a digital world
NEW RULES
•   By now, it is pretty clear - this whole Internet thing has no respect for
    established territories and local regulations
•   Any web property is an international provision of information
•   Empowered online health consumers are seeking answers, and will not be
    confined to the information that is given to them based on their location or
    language
•   The environment has already moved to two-way engagement
    •   Local regulation hasn’t caught up - simply cannot catch up: Future shock
        "too much change in too short a period of time"
        •
    • Dynamic, fluctuating landscape requires dynamic, evolving strategy
    •   Have to move and respond quickly - but have solid guiding principles

                                Healthcare engagement in a digital world
PROPOSITION
• 2010could well be the year where the most innovative
 companies develop comprehensive and overarching global
 engagement strategies
• Multi-channel, fully
                  integrated, holistic strategy which evolves
 based on continuous measurement and discovery
• Central   tenets - global framework - local implementation
• Consistency   and continuity of brand



                         Healthcare engagement in a digital world
DISCUSSION
• What    do you believe are the challenges to defining an
    overarching global engagement strategy?
•   What opportunities exist for developing global engagement
    guidelines that are not technology specific?
• What    are some of the lowest common denominator aspects
    of engagement - as observed in the HES Award winners?
    •   People - we are human, want to be treated as humans (not users, or
        patients, or any other label)
    •   Respect - cultural, lingual, integrity, openness

                             Healthcare engagement in a digital world
LESSONS LEARNED
   Healthcare engagement in a digital world
INSIGHTS FROM HES
• Engagement      brings returns internally and externally
• Look   for champions
• Allow   groups to self-organise
• “MacGyver-ize” -    use what you have
• Content     is king - use experts, real people, rich media
• Digitise   repetitive content to improve efficiencies
• Take   time to understand the changing landscape

                        Healthcare engagement in a digital world
INSIGHTS FROM HES
• Undertake    projects with partners, and competitors
• Useshared human experiences offline (competitions,
 experiments etc) to forge bonds and learning online
• Passion   counts in healthcare
• Clear   guidelines - we are human
• Seek and listen to those who are NOT engaged, incorporate
 their feedback
• Foster   controversy, don’t shy away from it
                      Healthcare engagement in a digital world
INSIGHTS FROM HES
•A   big idea is still a big idea
• Measure     everything - but start with the right questions
 •   Intelligence - Passive versus active (submarine)
 •   Data/Trends – without necessarily delving into verbatim (AEs)
 •   Listen, learn, engage, DISCOVER
 •   Funnels, alerts, events, assignment rules
• Money and scale doesn’t equal success (innovation is born
 from adversity) – start small

                         Healthcare engagement in a digital world
INSIGHTS FROM HES
• Think   about what you can give;
           “I asked of life, ‘What have you to offer me?’
          The answer came, ‘What have you got to give?”
• Go   where they are – convenience
• Integrate   with offline/other channels
• Sidewiki, Google   – can’t control everything
• No   territories anymore (think global)


                      Healthcare engagement in a digital world
INSIGHTS FROM HES
• Actually      not that complicated;
  •   Remembering that this ‘engagement stuff ’ is about people
      •   Honesty and openness, plain English
      •   Human: considering their needs
      •   Passion: it is about their life
      •   Respect – religion and politics
      •   No hidden agendas - betrayal
• Although       it certainly take some serious thought = strategy


                             Healthcare engagement in a digital world
DISCUSSION
• Breakinto groups where you can discuss areas where
 you believe you could see improvements in
 engagement strategy
 • What   have you learned today that you can implement?
 • What   advice do your peers have for your situation?
 • What  is an obstacle to engagement success in your
   organisation?
 • What   will you do next?

                    Healthcare engagement in a digital world
Determine




                                            Deploy                         Define




DISCOVERY                                                      Discover
Creation Healthcare discovery
 methodology for informed                  Develop                         Direct
    engagement strategy

                                                                 Design




                    Healthcare engagement in a digital world
FINAL THOUGHTS
  Healthcare engagement in a digital world

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Healthcare Engagement Strategy 2010: Insights from winning strategies

  • 1. 2010 AWARDS Hilton Park Lane, London 15th April 2010 Paul Grant / Daniel Ghinn
  • 2. VIDEO: What does healthcare engagement mean to you? http://www.youtube.com/watch?v=Kj-8fdMqRRY Healthcare engagement in a digital world
  • 3. ANOTHER AWARD? • Recognise more than just creative work or buzz • ‘Engaging content’ versus actual engagement • Real engagement is good for “us”, but importantly can bring real difference to healthcare and to patients • Opportunity for us and the industry to learn: • What can we all take away from best practices? • Humility of winners - showing a willingness to learn, yet they themselves are leading • Goal to see improvements in real engagement in 2010 Healthcare engagement in a digital world
  • 4. Determine Deploy Define DISCOVERY Discover Creation Healthcare discovery methodology for informed Develop Direct engagement strategy Design Healthcare engagement in a digital world
  • 5. JUDGING PROCESS Healthcare engagement in a digital world
  • 6. NOMINATIONS • Predominantly received via Twitter • Some verbal • Some via email • >50 different projects or people for consideration Healthcare engagement in a digital world
  • 7. METHODOLOGY • Pub-chat opinion awards were the model initially • The process consisted of; • Nominations sent to international judges panel for initial review and opinion sharing (Spain, Mexico, Australia, USA, UK) • Criteria and weighting based on actual engagement (patients, HCPs, marketing, tangible outcome, beneficial to human healthcare) • Short-listed entrants • Interviews with finalists (objectives and outcomes) • Awards announced Healthcare engagement in a digital world
  • 8. HES AWARD WINNERS Healthcare engagement in a digital world
  • 9. JOHNSON & JOHNSON HEALTH CHANNEL ON YOUTUBE Best Engagement Through Video Healthcare engagement in a digital world
  • 10. OVERVIEW • Over 1.5 million views since 2008 • Proactive engagement, interacting with comments: • Puts a human face on the corporation and goes to core values of connecting with the customer, engaging and having 1-to-1 dialogue • 90-95% videos are not product specific • Good source of objective healthcare information • Let’s take a closer look... Healthcare engagement in a digital world
  • 11. Healthcare engagement in a digital world
  • 12. WHAT WE LIKE • Actually engaging proactively • Honest and open stance on what is and isn’t within the control of the company - plain English legalities • Consistency in moderation of conversation; • Allowing controversial content, but drawing the line on off-topic, obscene, or inappropriate behaviour • Reaching a population where over 50% are women with ages between 40-55 - not that this is a goal Healthcare engagement in a digital world
  • 13. WHAT WE LIKE • Reputational ROI; • Objective evidence that a lot of people have seen these videos • Subjective evidence that people are appreciating it, and that appreciation is rolling over to appreciation of the company • Just one part of J&J’s engagement strategy • Respondingto comments, and keeping a balance with when and whether to signpost information • Not providing medical advice • Historical evidence suggests fear of AEs is a ‘red herring’ Healthcare engagement in a digital world
  • 14. IN THEIR WORDS • Allowing the community to publish controversial content; “It’s an open forum, except for inappropriate or off-topic comments... and what I’ve found is that the community corrects itself. If somebody says, ‘bipolar doesn’t exist, you’re all crazy!’ then somebody will say ‘yes it does, and if you had a loved one in this situation then you would understand’.” Rob Halper, Director of Video Communication for Johnson & Johnson Healthcare engagement in a digital world
  • 15. IN THEIR WORDS • Rather than talking about products; “I’m more interested in telling the good story about patients who are coping with a disorder, or doing things to make themselves more healthy, and if people become more aware of that disease state and want to look into it more, great. And if they are just interested in the information that’s great too.” Rob Halper, Director of Video Communication for Johnson & Johnson Healthcare engagement in a digital world
  • 16. THEIR ADVICE • Keep the content fresh • Monitor comments every day, all day long. Views, what’s being said, who’s subscribing. • It’s important to be really open & honest. If you make a mistake, or offend somebody, take responsibility about it. • Don’t try to sneak in a commercial message without being transparent about it. If there’s a product video, don’t pretend that it’s an objective video. People won’t be fooled. Healthcare engagement in a digital world
  • 17. OBSERVATIONS • Allowing comments - a brave new world • The community will self-regulate to a large extent • Legally distance from 3rd party content • Lo-cost channels can be highly engaging • Content is king • Openness and transparency are the best tenets Healthcare engagement in a digital world
  • 18. RELEVANT LINKS • http://creationinteractive.com/articles/best-engagement- through-video-award/ • http://www.youtube.com/user/JNJhealth • http://jnjbtw.com/ Healthcare engagement in a digital world
  • 19. TUDIABETES Best Patient Community Healthcare engagement in a digital world
  • 20. OVERVIEW • Providing a platform for people touched by diabetes, to connect • 20,000 members in two language communities • Strongawareness campaigns using social networks and media which transcends language or culture • Video, photos, creative expression • Partnership with industry • Let’s take a closer look... Healthcare engagement in a digital world
  • 21. Healthcare engagement in a digital world
  • 22. WHAT WE LIKE • Community is centred on patients and caregivers • Helping to overcome ‘closet condition’ and provide a safe place for support and openness • Clearabout complimenting interactions with the patient’s medical team - never a substitute, yet some types of support through the community simply could not be offered by even the most committed medical team Healthcare engagement in a digital world
  • 23. CASE STUDY • Founder was diagnosed with Type II Diabetes, and seemed like a typical case. • Treated by a general practitioner with strong relationship and history, but not a specialist - failing treatment • Eventually referred to an endocrinologist, diagnosed as Type I through two different tests • Many members of the community are in a similar situation when they join. Treatment is not working, GP trying many things. • Community identifies these cases and can advise the patient to speak with the GP about the two tests - sometimes makes a big difference Healthcare engagement in a digital world
  • 24. WHAT WE LIKE • Toe in the water on community participative projects; • Testing blood sugar glucose at the same time • 1400 people sharing a personal, individual moment • People respectfully encouraging high/low value patients to treat as soon as possible, or asking why they thought it was this way. • Self-supporting • A big success! • Next step was to take it outside the community... Healthcare engagement in a digital world
  • 25. CASE STUDY • November 2009 “The Big Blue Test”, participation project with other Diabetes patient groups; • Goal to break into trending topics on Twitter • Dimension of physical activity; • Test, exercise for 14 minutes, test • 80% of 2000 participants reported a drop of 20 points • Shocked to discover or rediscover this was possible • A powerful community moment, group learning through shared experience Healthcare engagement in a digital world
  • 26. IN THEIR WORDS • Support empowers patients in times of emotional strain “We have a lot of testimonials from people who describe specifically how they’ve been able to reduce their haemoglobin A1C number from a higher place to a number in the 6’s or sometimes in the 5’s – that’s practically normal, non-diabetic A1C... by simply participating with others with diabetes who are doing things differently, then going back and discussing with their doctors and incorporating new things into their therapy.” Manny Hernandez, Founder of TuDiabetes Healthcare engagement in a digital world
  • 27. WHAT WE LIKE • Started using other channels with a goal to increase membership... • Realised that different people need different channels, it is not about having all people using all channels. • Creating contests and syndicating through other channels • Integrating online content with offline initiatives • Diabetes poetry book, 40 members and 100 submissions • Using 6” x 4” postcards in surgeries to grow online members Healthcare engagement in a digital world
  • 28. CASE STUDY • October 2009 “Making sense of Diabetes”, participation project sponsored by Boehringer Ingelheim Pharmaceuticals; • Eachweek of October dedicated to a different sense. “Life with Diabetes through that sense” • Winners each week • Compilation video in time for World Diabetes Day Healthcare engagement in a digital world
  • 29. http://www.youtube.com/watch?v=29bng1H4XTs Healthcare engagement in a digital world
  • 30. THEIR ADVICE • It’s critical to have at the helm of the community - running the community - people that are directly impacted by the condition. • The kind of passion you have when you live with it on a daily basis goes a long way. • You need to nurture a community, and make sure it stays on track. And you need to define what ‘on track’ means for you. • Define what the guiding principles are for your community • It helps if you have some clear rules that you are expecting people to follow Healthcare engagement in a digital world
  • 31. THEIR ADVICE • Listen to people who are not engaged in the community and incorporate their feedback E.g. ‘Sign-up’ button “Without your members, your community is meaningless, pointless. It’s important to listen to what your members have to say.” • People in both communities take time to manage day to day activities – members moderating members for approval before joining, to keep spammers at bay.; “...we need to keep an eye on the conversation to make sure that the spirit and the overall environment in the community stays true to the values that we have articulated for the community.” Healthcare engagement in a digital world
  • 32. OBSERVATIONS • Evolve - the vision may not be the reality • Health is controversial, let the conversations take place; • Foster the conversations that need to happen • Healthcare reform, politics, religion - respect and flow • Not just moderating, but highlighting the positive • Use ‘Lo-tech’ and offline creative ideas, facilitated through social networks and participative sharing • Allow people to engage where it is most convenient for them Healthcare engagement in a digital world
  • 33. RELEVANT LINKS • http://creationinteractive.com/articles/best-patient-community- award/ • http://www.tudiabetes.org/ • http://www.estudiabetes.org/ • http://www.tudiabetes.org/notes/Making_Sense_of_Diabetes • http://www.tudiabetes.org/profiles/blogs/world-diabetes- day-2009-1 Healthcare engagement in a digital world
  • 34. SKCIN’S COMPUTERTAN CAMPAIGN Best health issue awareness campaign Healthcare engagement in a digital world
  • 35. OVERVIEW • “Don’t be fooled. UV exposure can kill” • A simple campaign about raising awareness • Presented with ‘state-of-the-art’ components • iPhone application, web application, supporting products and e- commerce facility, viral sharing tools, seeded through bloggers • Big traditional media support, 25,000 free tanning session pamphlets, 50 digital cross-tracks, 1000 London Taxi screens • More than 1.5 million visitors • Let’s take a closer look... Healthcare engagement in a digital world
  • 36. Healthcare engagement in a digital world
  • 37. Healthcare engagement in a digital world
  • 38. WHAT WE LIKE • More people (+35%) die of skin cancer in the UK than in Australia - an awareness issue that needs solving • Thinking about engagement from a viral point of view - the mechanism is ‘spoof ’ • Actually principally hooks the target audience and reveals the message after they have fully engaged • Alwaysa challenge to get a message to the younger generation - meets them in their domain Healthcare engagement in a digital world
  • 39. IN THEIR WORDS “I think we’ve learned that the desire for UV tanning is even more prevalent than we’d anticipated, and clearly the problem doesn’t exist only in this country. Because of the nature of the world wide web, it’s opened up the campaign to a further 180 countries, from which we’ve had a huge media response in those countries. It makes you realise that on a global scale it’s a huge problem. In particular the campaign was aimed at a younger audience really, and teenagers, who use and interact with the web. They seem to be less knowledgeable or concerned about cancer in general. ...and are really unaware of the dangers of UV tanning.” Kathryn Clifford, Marketing & Creative, Skcin (The Karen Clifford Skin Cancer Charity) Healthcare engagement in a digital world
  • 40. THEIR ADVICE • Utilising spoof is a great way to do it; “It achieved a lot of press coverage. We were very lucky because the creative idea was the brainchild of McCann Erickson. We were extremely lucky to have had them work with us on this.” • Utilising the web is a great way of doing it – far more cost- effective. And it’s quantifiable; you know how many people have got your message. And it’s the way to go when you’re trying to reach a younger audience. Healthcare engagement in a digital world
  • 41. OBSERVATIONS • The Internet has no boundaries - any campaign is a global campaign • Right message, right platform, right people • Attention to detail and investment in multiple channels gives the message more ‘authenticity’ •A big idea is a winning idea - traditional media still love a story • Engagement can be about how ‘bought in’ the audience is Healthcare engagement in a digital world
  • 42. RELEVANT LINKS • http://creationinteractive.com/articles/best-health-issue- awareness-campaign-award/ • http://computertan.com/ • http://phobos.apple.com/WebObjects/MZStore.woa/wa/ viewSoftware?id=305194397&mt=8 • http://www.skcin.org/skcin_media_coverage.php • http://www.skcin.org/media/Computertan%20Case %20Study.pdf Healthcare engagement in a digital world
  • 43. GET REAL. GET A PRESCRIPTION Best integrated engagement strategy Healthcare engagement in a digital world
  • 44. OVERVIEW • Anti-counterfeit medicine campaign • Stakeholder engagement collaboration; • Pfizer, UK government regulator the MHRA, the Royal Pharmaceutical Society of Great Britain (RPSGB), and patient groups such as HEART UK and The Patients Association • Full channel integration: • Cinema, TV, Print, Outdoor, online, PPC, social media sharing - goal of affecting and demonstrating change in online behaviour • Let’s take a closer look... Healthcare engagement in a digital world
  • 45. Healthcare engagement in a digital world
  • 46. WHAT WE LIKE • Tackling an issue as a consortium and therefore reaching stakeholders across every area of healthcare - educating even professionals • A research informed initiative - evidence justified the approach • Phased approach with continuous improvement through discovery - minor tweaks with major benefits • Innovation within guidelines and continuing to use channels that have constraints - such as paid online advertising • Syndicated by police, NHS Trusts, Pharmacy chains Healthcare engagement in a digital world
  • 47. WHAT WE LIKE • Mechanisms for gathering evidence of a tangible outcome • Sharing analytics between stakeholders, building measurable user journey across multiple domains and stakeholders • Providing opportunities for two-way engagement through appropriate channels and partners • Sign-posting patients back into the legitimate healthcare system for correct care • 85% of people intercepted by therapy specific pages said that they would change the way they buy medicine online, based on their new understanding of the safety issues around unregistered online sources Healthcare engagement in a digital world
  • 48. IN THEIR WORDS • Fighting the war on counterfeit medicine at the front line; “Working online itself was an important element, as evidence shows that a high proportion of illicit medicine purchases are conducted via the web, and through the web site we were able to direct consumers in the way we set out to, explain more about the campaign, and employ a variety of strategies to try and intervene directly in that online illicit ‘patient journey’ and ultimately try and change behaviour.” Andrew Widger, Associate Director, Communications UK/Europe at Pfizer Healthcare engagement in a digital world
  • 49. IN THEIR WORDS • Evidence at every point of the campaign; “It should be remembered that while this campaign seems simple – a ’shocking’ visual representation of the dangers, as a hook to encourage people to find out more – it is firmly rooted in evidence from a variety of sources, and validated by in-house medical colleagues, legal counsel, and partner regulatory organisations. This provided an important basis for the campaign to push boundaries, in terms of memorable creative and the use of new channels and techniques, while being assured that any criticism could be met with robust, evidence based justification.” Andrew Widger, Associate Director, Communications UK/Europe at Pfizer Healthcare engagement in a digital world
  • 50. THEIR ADVICE • Be brave; • If a message is worth delivering, it is worth investing in the time to be creative • Be prepared; • If you want people to take notice, and discuss your campaign and its messages, you need to be prepared to let them do so, and you need to be ready to offer further guidance, or respond to enquiries, or offer support to people and groups who want to join in - for example, we didn't expect a local police force to adopt our materials. • Be ‘future-proof ’; • Develop resources that can grow, change, or be repurposed as your campaign gains momentum. For example, our web assets have all been designed for future growth; while the video advert has been created in such a way that it can quickly be translated and repurposed for other markets. Consequently assets from the Get Real campaign have reached audiences in the Netherlands and Israel to date, and plans exist for use in other countries. Healthcare engagement in a digital world
  • 51. OBSERVATIONS • Research can make budget expenditure more focused • Measure everything, but know what the questions are • Do not ‘set and forget’. Continuous improvement increases effectiveness over time. • Be flexible, if a message is noteworthy the community can ‘run-away’ with it on their own terms • Partnershipsstrengthen the transparency and intent of the cause, and create momentum through other stakeholders Healthcare engagement in a digital world
  • 52. RELEVANT LINKS • http://creationinteractive.com/articles/best-integrated- engagement-strategy-award/ • http://realdanger.co.uk • http://www.youtube.com/pfizeruk • www.mhra.gov.uk/buy-medicines-online • www.internetpharmacylogo.org Healthcare engagement in a digital world
  • 53. MAYO CLINIC Best hospital or clinic Healthcare engagement in a digital world
  • 54. OVERVIEW • “The needs of the patient come first” • Treating more than 500,000 patients per year • Reaching beyond physical clinic locations using a mix of old and new channels • Radio, streaming podcasts, video, Twitter, Facebook, Blogs, video FAQs, private online groups, and more. • Using digital channels to increase engagement internally • Let’s take a closer look... Healthcare engagement in a digital world
  • 55. Healthcare engagement in a digital world
  • 56. WHAT WE LIKE • They build on what is already going on and extend it; • “MacGyver-ize” - taking old assets and moving into new channels • Provided radio content for more than 20 years • Started moving it into podcast format around 2005 • Also lifted audio from TV interviews and other video collateral • Evolved to two-way engagement through Twitter and email • Questions come in (#mayoradio) and experts reply on the MedicalEdge Weekend radio show - streamed live and OnDemand • Information is traveling further than the reach of their clinics Healthcare engagement in a digital world
  • 57. Healthcare engagement in a digital world
  • 58. CASE STUDY • Rare diseases - gaps in knowledge or support • Postural Orthostatic Tachycardia Syndrome (POTS) • Affects teenage girls - sudden change in heart function • Often misdiagnosed as stress by doctors • Received letters from out of area people who have heard the podcast and travelled to the clinic, after finally finding someone who recognises the condition • Heard more than 20,000 times Healthcare engagement in a digital world
  • 59. IN THEIR WORDS • Publishing plays a clear role in online engagement “It is really helpful when you have some of world’s leading experts on a particular condition – if you can have them talk for 10 or 20 minutes on that topic – that is highly valuable to patients or their families, who are looking for the kind of in- depth information that previously was not possible to get.” Lee Aase, Manager for Syndication & Social Media, Mayo Clinic Healthcare engagement in a digital world
  • 60. CASE STUDY • Piloting a digital FAQ / video FAQ for first-time patients in the Dental Specialty Area • Physicians spending a lot of time with patients in the first visit going over the same information • Video content provided prior to first visit • Achieving more specialist care on that first visit • Assessing patient and provider satisfaction • Secret Facebook groups with a medical staff person, where patients can ask questions and find mutual support or feedback Healthcare engagement in a digital world
  • 61. WHAT WE LIKE • Thinking about engagement holistically, both internally and externally • Looking at how to create strategies for collaboration using social media, within the organisation • E.g. Internal blog about corporate strategic plan; • Employees engage on how to apply strategic themes (core values) to their role and work • Look for and appoint leaders for the strategic themes • Allow groups to self-organise • Teams can be assembled around patients better Healthcare engagement in a digital world
  • 62. THEIR ADVICE • Develop a personal familiarity with social media before applying it in the workplace; “Take the time to understand the ‘ways of the world’ of social media so that you don’t end up with faux-pas that would be embarrassing to your organisation and hinder adoption.” • Start with what you have, and look for ways to gradually take steps towards better engagement, one thing at a time. Rather than hiring lots of people to ‘blast through’. Inefficient if a blast approach; “If you have significant expenses involved, you will be looking for the payback too soon, and will act in ways that are not in keeping with social media.You will end up being too ‘hard sell’.” Healthcare engagement in a digital world
  • 63. OBSERVATIONS • Start small, continuous improvement through discovery • Develop internal expertise in social media so that you can train the subject matter experts to engage effectively. • Find the evangelists. • Then empower your people. • Find ways to keep costs down – don’t build up big overheads. • Shoot a video, rather than a blog post – people will see the real doctor, which is much more reassuring (and credible). Healthcare engagement in a digital world
  • 64. RELEVANT LINKS • http://creationinteractive.com/articles/best-hospital-or-clinic- award/ • http://www.mayoclinic.com/health/stress-management/ MY00435/TAB=expertblog • http://radio.mayoclinic.org/ • http://www.facebook.com/MayoClinic • http://www.youtube.com/user/mayoclinic Healthcare engagement in a digital world
  • 65. PATIENTSLIKEME Changing Healthcare Healthcare engagement in a digital world
  • 66. OVERVIEW • 50,000 patient members • Capturing 10% of newly-diagnosed MS patients in the US • Capturing 20% of newly-diagnosed ALS patients in the US • Putting the patient at the centre of healthcare • Providing tools for patient to patient dialogue • Observational study data for the benefit of industry • Let’s take a closer look... Healthcare engagement in a digital world
  • 67. Healthcare engagement in a digital world
  • 68. WHAT WE LIKE • Engagement strategy most likely to change healthcare • 21% of patients changed physician as a result of the community • Helping people with rare diseases find others; • 85% of respondents said that they felt better about themselves because of recognition from others that their condition is real. • Givinginformation that the patient needs, not what the healthcare industry defines as being the right information • Comparative analysis to find similarities to learn from Healthcare engagement in a digital world
  • 69. WHAT WE LIKE • Trying to understand and define what ‘patient-centric’ medicine actually could mean • Privacy and openness • Started with what they had to give; • Sharing their life-experience and research • Discovery model for continuous improvement - learning about how different therapeutic areas have different measurement needs; It’s not one size fits all Healthcare engagement in a digital world
  • 70. WHAT WE LIKE • Making a difference to patients • An open framework for patients to measure on health • Experimentation; • ‘Mood’ community detailed scale did not measure mania with the sensitivity that was needed - evolutionary fixes “This isn’t a controlled clinical trial, this is an evolutionary platform that’s continuously trying to measure better and better, human health.” • Aligning interests of patients with interests of industry (UCB) Healthcare engagement in a digital world
  • 71. CASE STUDY • Fibromyalgia community launched at end of 2008, and has been fastest growing community. • Grown to over 10,000 patients already, 856 new patients in 3 weeks of 2010 • Added chronic fatigue syndrome to this community in response to new science information about XMRV virus; • Scientists found that XMRV virus is much more common in chronic fatigue patients. • Brand new science very quickly deployed into the community • Ability to be part of the quickening and acceleration of science in a specific space Healthcare engagement in a digital world
  • 72. IN THEIR WORDS • On the philosophy of giving patients tools to discover and learn from others; “...given where I’m at; everyone else who got to where I am; what’s their path so I know the range of outcomes and then how do I get there if I wanted to go on the best path that I can hope to achieve? What are the interventions, techniques, things that can change my quality of life, my outcomes.” Ben Heywood, Co-Founder & President, Patientslikeme Healthcare engagement in a digital world
  • 73. IN THEIR WORDS • On proving to industry where their observational data sits in the evidence spectrum; “We look to work in the clinical research space with our data and our information. We know there’s a hurdle as a healthcare pro or trained expert, to coming to the idea about this info that’s collected through shared experiences; ‘wisdom of crowds’. We have a long way to go to achieve full acceptance of this data” Ben Heywood, Co-Founder & President, Patientslikeme Healthcare engagement in a digital world
  • 74. THEIR ADVICE • Health data is individual, so doing something meaningful with it is a challenge. It’s not simply about adding IT to healthcare. • Startby aiming to solve an individual patient’s problem; then solving two patients’ problems; before solving the whole community’s problems. Otherwise, it becomes too big a challenge. Healthcare engagement in a digital world
  • 75. OBSERVATIONS • Innovation - by measuring everything there is a wealth of intelligence. Make it useful • Give to the community • Start with the needs of the community, not the needs of the organisation or message • Continuous improvement through discovery Healthcare engagement in a digital world
  • 76. RELEVANT LINKS • http://creationinteractive.com/articles/changing-healthcare- award/ • http://www.patientslikeme.com/ • http://www.patientslikeme.com/als/community • http://blog.patientslikeme.com/ Healthcare engagement in a digital world
  • 77. LOCAL TO GLOBAL Healthcare engagement in a digital world
  • 78. RECAPPING ’09 • So what did we see in 2009? • Some good progress in healthcare engagement strategies, as evidenced by the nominees and winners of HES Awards • Lots of buzz about social media; • Some regulatory confusion - FDA hearings • Who did what first - does it matter? • Yet, social media is only one piece of the engagement puzzle • An amazing number of social media experts “After all is said and done, there is a lot more said than done” Healthcare engagement in a digital world
  • 79. TIMES ARE A CHANGING • Privacy default setting to ‘public’, average person still not very aware • Increasingly ‘long-tail’ of individual touch points and ways to experience the informational and networking opportunities of the Internet; • So is Facebook a certainty? (Remember FriendsReunited, MySpace?) • YouTube? • Google? • etc Healthcare engagement in a digital world
  • 80. TRUTHS • Soif we were seeking to distill some concrete overarching concepts: • Change is certain • There is a human appetite for knowledge and information; • There is potentially a value to building intelligence assets • The Internet provides a new way to have community and a sense of belonging - and the global population is now embracing it • Sharing and need to participate - Maslow’s hierarchy of needs Healthcare engagement in a digital world
  • 81. UNIVERSAL NEEDS Healthcare engagement in a digital world
  • 82. NEW RULES • By now, it is pretty clear - this whole Internet thing has no respect for established territories and local regulations • Any web property is an international provision of information • Empowered online health consumers are seeking answers, and will not be confined to the information that is given to them based on their location or language • The environment has already moved to two-way engagement • Local regulation hasn’t caught up - simply cannot catch up: Future shock "too much change in too short a period of time" • • Dynamic, fluctuating landscape requires dynamic, evolving strategy • Have to move and respond quickly - but have solid guiding principles Healthcare engagement in a digital world
  • 83. PROPOSITION • 2010could well be the year where the most innovative companies develop comprehensive and overarching global engagement strategies • Multi-channel, fully integrated, holistic strategy which evolves based on continuous measurement and discovery • Central tenets - global framework - local implementation • Consistency and continuity of brand Healthcare engagement in a digital world
  • 84. DISCUSSION • What do you believe are the challenges to defining an overarching global engagement strategy? • What opportunities exist for developing global engagement guidelines that are not technology specific? • What are some of the lowest common denominator aspects of engagement - as observed in the HES Award winners? • People - we are human, want to be treated as humans (not users, or patients, or any other label) • Respect - cultural, lingual, integrity, openness Healthcare engagement in a digital world
  • 85. LESSONS LEARNED Healthcare engagement in a digital world
  • 86. INSIGHTS FROM HES • Engagement brings returns internally and externally • Look for champions • Allow groups to self-organise • “MacGyver-ize” - use what you have • Content is king - use experts, real people, rich media • Digitise repetitive content to improve efficiencies • Take time to understand the changing landscape Healthcare engagement in a digital world
  • 87. INSIGHTS FROM HES • Undertake projects with partners, and competitors • Useshared human experiences offline (competitions, experiments etc) to forge bonds and learning online • Passion counts in healthcare • Clear guidelines - we are human • Seek and listen to those who are NOT engaged, incorporate their feedback • Foster controversy, don’t shy away from it Healthcare engagement in a digital world
  • 88. INSIGHTS FROM HES •A big idea is still a big idea • Measure everything - but start with the right questions • Intelligence - Passive versus active (submarine) • Data/Trends – without necessarily delving into verbatim (AEs) • Listen, learn, engage, DISCOVER • Funnels, alerts, events, assignment rules • Money and scale doesn’t equal success (innovation is born from adversity) – start small Healthcare engagement in a digital world
  • 89. INSIGHTS FROM HES • Think about what you can give; “I asked of life, ‘What have you to offer me?’ The answer came, ‘What have you got to give?” • Go where they are – convenience • Integrate with offline/other channels • Sidewiki, Google – can’t control everything • No territories anymore (think global) Healthcare engagement in a digital world
  • 90. INSIGHTS FROM HES • Actually not that complicated; • Remembering that this ‘engagement stuff ’ is about people • Honesty and openness, plain English • Human: considering their needs • Passion: it is about their life • Respect – religion and politics • No hidden agendas - betrayal • Although it certainly take some serious thought = strategy Healthcare engagement in a digital world
  • 91. DISCUSSION • Breakinto groups where you can discuss areas where you believe you could see improvements in engagement strategy • What have you learned today that you can implement? • What advice do your peers have for your situation? • What is an obstacle to engagement success in your organisation? • What will you do next? Healthcare engagement in a digital world
  • 92. Determine Deploy Define DISCOVERY Discover Creation Healthcare discovery methodology for informed Develop Direct engagement strategy Design Healthcare engagement in a digital world
  • 93. FINAL THOUGHTS Healthcare engagement in a digital world