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The power
                                                              tools of the
                                                               E4-patient

Heleen Borleffs                                              How to
eCare strategie & implementatie                                 Equip &
tangible-result.com
                                                                    Enable the
      tangibleresult@gmail.com                                         Engaged &
      Saartje@insites-consulting.com                                       Empowered
      http://nl.linkedin.com/pub/heleen-borleffs/0/270/103                     patient
      http://be.linkedin.com/in/saartjevandenbranden




                                                               www.insites-consulting.com

                                                               Ghent I Rotterdam I London I Timisoara I New York
Nice to
                                                       meet you!
                                                       Heleen Borleffs,
                                                       Program manager
                                                       Concept 2 completion in eCare

                                                       Honored to replace Saartje van den
                                                       Branden and proud of working with Insites
                                                       as the best research agency of the
                                                       Netherlands . We both are passionate
                                                       about connecting (with) empowered
info@tangible-result.com                               patients, passionate HCPs and forward
                                                       thinking health companies, to bring health
                                                       to the next level together
                                                       Living in Amsterdam and love to travel to
http://nl.linkedin.com/pub/heleen-borleffs/0/270/103
                                                       meet people of all nations to explore &
                                                       implement eCare solutions together. Just
                                                       back from inspirational eHealth “moments”
                                                       in California
Patients have stepped forward
to actively participate in the
conversations about their health




                          Empowered patients
                           are a FACT today
1   2   3
              A third globally
            impactful movement
                 in history
e-Patient Dave
    @ePatientDave

   “Gimme my damn data”
   Diagnosed with stage IV kidney cancer 2007
   Took an active role in his treatment & survived
   Inspiration for Novartis
   Current job: healthcare consultant!




                                                      Who is this guy?
83%
already used the
     internet
… to look for information on health
related topics.

The internet enables them to look for
information themselves.

Dr. Google is their guide in their
search.




Source: “How to engage in the conversation with empowered patients”
                                        by InSites Consulting - 2010
43%
                                           Monthly                                 Less than monthly


                                      Male                    38%             Male                   62%

                                   Female                         47%       Female                 53%


even looks for online
                                     18-24                        47%        18-24                 53%


health info every                    25-34                       45%         25-34                 55%

                                     35-44                      43%          35-44                  57%

month                                45-54                    38%            45-54                   62%

                                     55-64                     40%           55-64                  60%

                                       65+                      42%            65+                  58%




                                                                                       Empowered patients
                Source: “How to engage in the conversation with empowered patients”
                                                        by InSites Consulting - 2010    are a FACT today
                                                                                                      10
Patients with the more                            % of patients with disorder ... who
                                                  looked for online info on that disorder
PREVALENT DISORDERS                                                Hairloss                                            39%


use the Internet MOST                               Menopause symptoms
                                                                    Arthritis
                                                          Bladder infection
                                                                                                               33%
                                                                                                             31%
                                                                                                                     37%



                                                         Libido impairment                                  30%
                                                       Erectile dysfunction                                29%
                                                                    Obesity                                29%
                                                                Depression                                29%
                                                           Heart problems                                 29%
                                                                     Stress                              27%
                                                                    Anxiety                            26%
                                                           Fungal infection
                 Hairloss
                                                                                                       25%
                                                            Sleep disorder                             25%
                                                      High blood pressure                             24%

             Menopause                                            Influenza
                                                                   Migraine
                                                                                                      24%
                                                                                                      24%
                                                       Stomach problems
                   Arthritis                                          Warts
                                                                                                     24%
                                                                                                     24%
                                                                    Allergy                         24%
         Bladder infection                                    Chronic pain
                                                           High cholesterol
                                                                                                    23%
                                                                                                   22%
                                                        Bronchial infection                        22%
          Libido impairment                                        Diabetes                       21%
                                                                   Sinusitis                      21%
          Erectile dysfunction            Gastroesophageal reflux disease                         21%
                                                                        Itch                     20%
                                                              Muscle ache                       19%
                         Obesity                         Intestinal problem                    19%
                                                            Herpes labialis                    19%
                    Depression                                   Headache                      19%
                                                                 Heartburn                    17%
                    Source: “How to engage in the conversation with empowered patients”
                                                                    Asthma
                                                                                              Opportunities
                                                                                             16%
                                                                                                                     for
                           Diabetes                                                             OTC companies         11
                                                          N total = min 30 / Filter 2010within people with that disorder
                                                           by InSites Consulting - = %
of patients says
60%   info found
      online affects
      decision about
      treatments
      Online information is impactful.


       56% says it changed their overall
       approach to maintaining their health
       or the health of someone they help
       take care of.

       53% says it leads to ask a doctor a
       new question or to get a second
       opinion from another doctor.




         Source: http://www.slideshare.net/PewInternet/2012-1-12-12-rise-of-
                          epatients-providence-st-joseph-medical-centerpptx
Healthcare
                           providers (finally)
                           start to realize!
                       Patient power tools are more than a
                                marketing vehicle.
                            It is a business strategy


                                                                         Healthcare is
Source: Social media integration study – the Conversation Manager 2011
                                                                           lagging
Patient power
tool: personal
information
An opportunity for the
industry to join or facilitate
the patient conversation!

    General information
             ≠
    Personal information
Manual               Automatic
logbook               logbook




          Internet
                                 Logbook app
          logbook




                                               Evolution of
                                                logbooks
If patients (have to)
track information,
  they appreciate
        help.
 Convenience is
key, they already
 suffer enough.
#What’sInIt4HealthCareProviders

              “Pharma companies would do well to provide
              tools that help patients help themselves.
              Even if they’re not promoting your product,
              they can offer it as a service of their
              company. Then people who are swimming
              around in the current talking to each other
              say good things about the company because
                                                               “
              it helped them.”             E-Patient Dave
                                       Healthcare consultant




                                               Boosting patient
                                                conversation
#What’sInIt4HealthCareProviders


Apps: think B2B2C


                 Life Science & health
                 industry
      Patients

                                  Physicians
Higher or Lower
      than



             %
      ?
                  What is the % of
                   smartphone
                  owners in EU?
%

                                              What is the % of
    Source: “Social media around the world”    smartphone
              by InSites Consulting - 2011    owners in EU?
25
installed
                             12                   in use




                                                      Apps are
            Source: “Social media around the world”   selected
                      by InSites Consulting - 2011    carefully
1. Apps for practical purposes
2. Apps for entertainment
3. Apps for connecting with others

Room for healthcare apps: 17% in 2012    30% in 2015!
                                                                                    17% today uses
                                          Source: “Social media around the world”
                                                    by InSites Consulting - 2011      health apps
Apps
throughout the
patient journey
From prevention to insulin reminders


Apps are definitely not restricted to
medication reminders.
Different apps have already been
developed for patients in different
disease stages.

Let’s take a look at different apps in the
diabetes patient journey.
Warning: patient
focus only
 GPs & specialists
 Nurses
 Pharmacists
 PATIENTS
 Insurers
 …
Case study
Apps in diabetes
… equipment which is enabling &
empowering the engaged chronic
patient!

to calculate the risk for a disease (prevention)
to find info about a disease
to keep track of what one consumes
to support in changing lifestyle
to create logbooks
…




                                                      Equipped
                                                   diabetic patients
Prevention tools
    CSR opportunities
                        3
1


    2




                        App example
Patients  news!
Health general
information


Broad
Therapy Area


Disease
specific


                              App example
Nutrition coach
       Supporting (newly diagnosed) patients
         in their struggle with the disease or
                connect with people on a diet

                          Daily totals for Carbs & Cals
    Store a Breakfast + Lunch + Dinner + 3 Snacks/day

    Calendar function to store and view past meals for
“                                        up to 2 years
       For diabetic patients made by diabetes experts
          (extended usage opportunities: non-patients)




                                        App example
Financial
coach!
Making (chronic) patients
conscious about healthcare
expenses


360° view of health (insurance)
spending
Overview of:
  total health care expense
  out-of-pocket expenses
  paid versus unpaid bills
  breakdown by family member




                                  App example
Glucose buddy – free app
Ranked the #1 diabetes iPhone app (for free) by Manny Hernandez
(founder of TuDiabetes.com)

Integrated with calory track
enter glucose numbers,
keeping track of carbohydrate consumption,
insulin dosages &
activities.




                                                                  App example
Gamification: a relevant trend for
patient services
Nutritional coach app for kids: carb counting with Lenny


Carb values for many basic foods
Customize the food Guide by adding your own foods

Fun, interactive games to test knowledge
Compete for game high scores against players across
the nation.




                                                           Gamification for
                                                           kids – boosting
                                                             motivation
“A very well designed idea. It combines
                                      lifestyle and mental health and is
                           expandable to broader groups. We love the
                              idea to embed this game in a care group.
                             Interesting that it uses a proven concept.”
                                                 The Future of Health Jury




HeartVille
Winner of 2012 Future of
Health Award




                                                     Gamification also
                                                       for adults…
App
development
Different potential players


•   Pharma companies
•   Patient organisations
•   Governments
•   Hospitals
•   Health insurers
•   HCPs
•   Social Media companies
•   …
Pharma companies start
investing in apps as well
They like to focus on the relation patient – health care provider


By Merck & Co.
Integration of different aspects of disease
management.

Guiding the (newly) diagnosed patient to
change his life
     –   Blood glucose monitoring
     –   Activity tracking
     –   Nutrition tracking
     –   Weight loss
         (in cooperation with       doctor)
     – Medication tracking
     –   Progress charts




                                                                    Apps by pharma
                                                                      companies
Pharma companies embrace
gamification
Syrum game




                           Gamification
                            by pharma
                            companies
Facebook supports donor campaign
of Belgian government with “app”




                               Apps by
                              government
Hospitals offer online services




                              Hospitals
Health insurer supports nursing
staff with mobile app


                      Mobile app leads to
                      • increased efficiency
                      • increased flexibility
                      • smoother planning of visits
                      • simplified administration
                      for nurses.

                      Why not provide similar apps to
                      patients?




                                         Health insurers
Don’t forget to involve   patient
                    organisations as well!
                    “It’s hard to love or promote something
                    you do not know yet.”




Hartstichting (NL) released mobile app

                                                Hartstichting
                                                 on track!
More apps & mobile contact
means
less offline contact
less visits
less income



Another way to look at the
phenomenon from a physician
point of view

                              Are apps a threat
                                for physician
                                  income?
considered the other way
                          around…




A combination of face-2-face & mobile/online
contact with patients, enables the physician to
enlarge his/her ‘patient base’ and serve the
need of newly diagnosed patients.
                                                  Apps can release
                                                    the burden…
Manual               Automatic
logbook               logbook




          Internet
                                 Logbook app
          logbook




                                               Evolution of
                                                logbooks
Manual               Automatic
logbook               logbook
                                                             THE
                                                           FUTURE -
                                                            WHAT’S
                                                            NEXT?
          Internet
                                       Logbook app
          logbook




                          “It would be nice to have an app where all you
                     would have to do is plug in your meter and it would
                       take your results, and you wouldn’t have to do any
                                                   more entering of info.”
                                                             Patti Ruggiero



                                                             Future of
                                                             logbooks
Start creating
  your own app
         is


     NOT
  the take away of
 this presentation

                     Let’s not go too
                           fast!
Just 1 example,
many more, so let’s
 not go too fast!
Listening to what
the patient needs
Apps for patients are only successful if they fill in
an existing need of a patient & if they take into
account existing barriers (practical, emotional,
physical…).

Connecting with the patient in an ongoing way
is the key to success.




                                             Observe, get
                                           inspired & then
                                                 act
………………………………………..……..…


Collaboration
Involve customers in
EVERYTHING you do.
………………………………………..……..…




                          Structural
                         partnerships
“Participatory medicine is not
 about patients taking over.
  Far from it – I’m fond of saying
that I’d be in sorry shape if I’d had
   to dream up the high-dosage
Interleukin-2 treatment that saved
               my life.”
           E-patient Dave




                                        Dave is no threat
                                         for physicians
Many Thanks! Questions?


             Heleen Borleffs
             Programma manager
             en eigenaar tangible-
             result




                        +31 6 3865 6000

                        info@tangible-result.com

                        http://nl.linkedin.com/pub/heleen-borleffs/0/270/103
Thanks! Questions?




                 +32 479 611 878

                 saartje@insites-consulting.com

                 @Saartje_VDB

                 http://be.linkedin.com/in/saartjevandenbranden



                                                  Contact

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Innovatie in health seminar saartje van den brande & heleen borleffs - insites consulting

  • 1. The power tools of the E4-patient Heleen Borleffs How to eCare strategie & implementatie Equip & tangible-result.com Enable the tangibleresult@gmail.com Engaged & Saartje@insites-consulting.com Empowered http://nl.linkedin.com/pub/heleen-borleffs/0/270/103 patient http://be.linkedin.com/in/saartjevandenbranden www.insites-consulting.com Ghent I Rotterdam I London I Timisoara I New York
  • 2. Nice to meet you! Heleen Borleffs, Program manager Concept 2 completion in eCare Honored to replace Saartje van den Branden and proud of working with Insites as the best research agency of the Netherlands . We both are passionate about connecting (with) empowered info@tangible-result.com patients, passionate HCPs and forward thinking health companies, to bring health to the next level together Living in Amsterdam and love to travel to http://nl.linkedin.com/pub/heleen-borleffs/0/270/103 meet people of all nations to explore & implement eCare solutions together. Just back from inspirational eHealth “moments” in California
  • 3.
  • 4.
  • 5.
  • 6. Patients have stepped forward to actively participate in the conversations about their health Empowered patients are a FACT today
  • 7. 1 2 3 A third globally impactful movement in history
  • 8. e-Patient Dave @ePatientDave  “Gimme my damn data”  Diagnosed with stage IV kidney cancer 2007  Took an active role in his treatment & survived  Inspiration for Novartis  Current job: healthcare consultant! Who is this guy?
  • 9. 83% already used the internet … to look for information on health related topics. The internet enables them to look for information themselves. Dr. Google is their guide in their search. Source: “How to engage in the conversation with empowered patients” by InSites Consulting - 2010
  • 10. 43% Monthly Less than monthly Male 38% Male 62% Female 47% Female 53% even looks for online 18-24 47% 18-24 53% health info every 25-34 45% 25-34 55% 35-44 43% 35-44 57% month 45-54 38% 45-54 62% 55-64 40% 55-64 60% 65+ 42% 65+ 58% Empowered patients Source: “How to engage in the conversation with empowered patients” by InSites Consulting - 2010 are a FACT today 10
  • 11. Patients with the more % of patients with disorder ... who looked for online info on that disorder PREVALENT DISORDERS Hairloss 39% use the Internet MOST Menopause symptoms Arthritis Bladder infection 33% 31% 37% Libido impairment 30% Erectile dysfunction 29% Obesity 29% Depression 29% Heart problems 29% Stress 27% Anxiety 26% Fungal infection Hairloss 25% Sleep disorder 25% High blood pressure 24% Menopause Influenza Migraine 24% 24% Stomach problems Arthritis Warts 24% 24% Allergy 24% Bladder infection Chronic pain High cholesterol 23% 22% Bronchial infection 22% Libido impairment Diabetes 21% Sinusitis 21% Erectile dysfunction Gastroesophageal reflux disease 21% Itch 20% Muscle ache 19% Obesity Intestinal problem 19% Herpes labialis 19% Depression Headache 19% Heartburn 17% Source: “How to engage in the conversation with empowered patients” Asthma Opportunities 16% for Diabetes OTC companies 11 N total = min 30 / Filter 2010within people with that disorder by InSites Consulting - = %
  • 12. of patients says 60% info found online affects decision about treatments Online information is impactful. 56% says it changed their overall approach to maintaining their health or the health of someone they help take care of. 53% says it leads to ask a doctor a new question or to get a second opinion from another doctor. Source: http://www.slideshare.net/PewInternet/2012-1-12-12-rise-of- epatients-providence-st-joseph-medical-centerpptx
  • 13. Healthcare providers (finally) start to realize! Patient power tools are more than a marketing vehicle. It is a business strategy Healthcare is Source: Social media integration study – the Conversation Manager 2011 lagging
  • 14. Patient power tool: personal information An opportunity for the industry to join or facilitate the patient conversation! General information ≠ Personal information
  • 15. Manual Automatic logbook logbook Internet Logbook app logbook Evolution of logbooks
  • 16. If patients (have to) track information, they appreciate help. Convenience is key, they already suffer enough.
  • 17. #What’sInIt4HealthCareProviders “Pharma companies would do well to provide tools that help patients help themselves. Even if they’re not promoting your product, they can offer it as a service of their company. Then people who are swimming around in the current talking to each other say good things about the company because “ it helped them.” E-Patient Dave Healthcare consultant Boosting patient conversation
  • 18. #What’sInIt4HealthCareProviders Apps: think B2B2C Life Science & health industry Patients Physicians
  • 19. Higher or Lower than % ? What is the % of smartphone owners in EU?
  • 20. % What is the % of Source: “Social media around the world” smartphone by InSites Consulting - 2011 owners in EU?
  • 21. 25 installed 12 in use Apps are Source: “Social media around the world” selected by InSites Consulting - 2011 carefully
  • 22. 1. Apps for practical purposes 2. Apps for entertainment 3. Apps for connecting with others Room for healthcare apps: 17% in 2012  30% in 2015! 17% today uses Source: “Social media around the world” by InSites Consulting - 2011 health apps
  • 23. Apps throughout the patient journey From prevention to insulin reminders Apps are definitely not restricted to medication reminders. Different apps have already been developed for patients in different disease stages. Let’s take a look at different apps in the diabetes patient journey.
  • 24. Warning: patient focus only  GPs & specialists  Nurses  Pharmacists  PATIENTS  Insurers  …
  • 25. Case study Apps in diabetes … equipment which is enabling & empowering the engaged chronic patient! to calculate the risk for a disease (prevention) to find info about a disease to keep track of what one consumes to support in changing lifestyle to create logbooks … Equipped diabetic patients
  • 26. Prevention tools CSR opportunities 3 1 2 App example
  • 27. Patients  news! Health general information Broad Therapy Area Disease specific App example
  • 28. Nutrition coach Supporting (newly diagnosed) patients in their struggle with the disease or connect with people on a diet Daily totals for Carbs & Cals Store a Breakfast + Lunch + Dinner + 3 Snacks/day Calendar function to store and view past meals for “ up to 2 years For diabetic patients made by diabetes experts (extended usage opportunities: non-patients) App example
  • 29. Financial coach! Making (chronic) patients conscious about healthcare expenses 360° view of health (insurance) spending Overview of: total health care expense out-of-pocket expenses paid versus unpaid bills breakdown by family member App example
  • 30. Glucose buddy – free app Ranked the #1 diabetes iPhone app (for free) by Manny Hernandez (founder of TuDiabetes.com) Integrated with calory track enter glucose numbers, keeping track of carbohydrate consumption, insulin dosages & activities. App example
  • 31. Gamification: a relevant trend for patient services Nutritional coach app for kids: carb counting with Lenny Carb values for many basic foods Customize the food Guide by adding your own foods Fun, interactive games to test knowledge Compete for game high scores against players across the nation. Gamification for kids – boosting motivation
  • 32. “A very well designed idea. It combines lifestyle and mental health and is expandable to broader groups. We love the idea to embed this game in a care group. Interesting that it uses a proven concept.” The Future of Health Jury HeartVille Winner of 2012 Future of Health Award Gamification also for adults…
  • 33. App development Different potential players • Pharma companies • Patient organisations • Governments • Hospitals • Health insurers • HCPs • Social Media companies • …
  • 34. Pharma companies start investing in apps as well They like to focus on the relation patient – health care provider By Merck & Co. Integration of different aspects of disease management. Guiding the (newly) diagnosed patient to change his life – Blood glucose monitoring – Activity tracking – Nutrition tracking – Weight loss (in cooperation with doctor) – Medication tracking – Progress charts Apps by pharma companies
  • 35. Pharma companies embrace gamification Syrum game Gamification by pharma companies
  • 36. Facebook supports donor campaign of Belgian government with “app” Apps by government
  • 37. Hospitals offer online services Hospitals
  • 38. Health insurer supports nursing staff with mobile app Mobile app leads to • increased efficiency • increased flexibility • smoother planning of visits • simplified administration for nurses. Why not provide similar apps to patients? Health insurers
  • 39. Don’t forget to involve patient organisations as well! “It’s hard to love or promote something you do not know yet.” Hartstichting (NL) released mobile app Hartstichting on track!
  • 40. More apps & mobile contact means less offline contact less visits less income Another way to look at the phenomenon from a physician point of view Are apps a threat for physician income?
  • 41. considered the other way around… A combination of face-2-face & mobile/online contact with patients, enables the physician to enlarge his/her ‘patient base’ and serve the need of newly diagnosed patients. Apps can release the burden…
  • 42. Manual Automatic logbook logbook Internet Logbook app logbook Evolution of logbooks
  • 43. Manual Automatic logbook logbook THE FUTURE - WHAT’S NEXT? Internet Logbook app logbook “It would be nice to have an app where all you would have to do is plug in your meter and it would take your results, and you wouldn’t have to do any more entering of info.” Patti Ruggiero Future of logbooks
  • 44. Start creating your own app is NOT the take away of this presentation Let’s not go too fast!
  • 45. Just 1 example, many more, so let’s not go too fast!
  • 46. Listening to what the patient needs Apps for patients are only successful if they fill in an existing need of a patient & if they take into account existing barriers (practical, emotional, physical…). Connecting with the patient in an ongoing way is the key to success. Observe, get inspired & then act
  • 47. ………………………………………..……..… Collaboration Involve customers in EVERYTHING you do. ………………………………………..……..… Structural partnerships
  • 48. “Participatory medicine is not about patients taking over. Far from it – I’m fond of saying that I’d be in sorry shape if I’d had to dream up the high-dosage Interleukin-2 treatment that saved my life.” E-patient Dave Dave is no threat for physicians
  • 49. Many Thanks! Questions? Heleen Borleffs Programma manager en eigenaar tangible- result +31 6 3865 6000 info@tangible-result.com http://nl.linkedin.com/pub/heleen-borleffs/0/270/103
  • 50. Thanks! Questions? +32 479 611 878 saartje@insites-consulting.com @Saartje_VDB http://be.linkedin.com/in/saartjevandenbranden Contact