July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
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The Maker movement is a do it yourself technology-based movement that espouses creativity and tinkering in community settings, and is creating innovative health solutions across the globe, yet most healthcare stakeholders are unaware of “makers” and the maker movement. In this webinar, Joyce Lee, MD, MPH, will talk about the maker movement, its impact inside the health community, and principles that can support the application of this movement to the healthcare enterprise. For information on future or past Edge Talks please visit the website http://theedge.nhsiq.nhs.uk/category/edge-talk/
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July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
- 1. @theEdgeNHS | #EdgeTalks THE MAKER MOVEMENT: A MODEL FOR HEALTHCARE TRANSFORMATION? Joyce Lee Friday 1st July 2016 at 9.30am BST
- 2. Joining in today and beyond • Please use the chat box to contribute continuously during the web seminar • Please tweet using hashtag #EdgeTalks and the handle @School4Radicals @theEdgeNHS • Send a request to join our Facebook group School for Health and Care Radicals and The Edge NHS
- 3. The team today Chat room monitor Carol Read @CarolLRead Twitter monitor Olly Benson @ollybenson Session chair Dom Cushnan @DomCushnan
- 5. Our Next Edge Talks August 5th Sue Haines Talent management September 2nd Maxine Craig Culture and Change
- 6. The Maker Movement: A Model for Healthcare Transformation? Joyce Lee, MD, MPH http://www.doctorasdesigner.com/Twitter : @joyclee
- 7. Agenda The Maker Movement and Participatory Design The Nightscout Project Research (Ethnography, Survey, Secondary analysis of Social Media) Design and Making as a Healthcare Platform
- 8. Agenda The Maker Movement and Participatory Design The Nightscout Project Research (Ethnography, Survey, Secondary analysis of Social Media) Design and Making as a Healthcare Platform
- 10. Associate Professor, Pediatric Endocrinologist Health Outcomes/Clinical Researcher Learning Health Systems Mobile Technology/Data Visualization Participatory Design/Social Media Quality Improvement Director for Pediatric Diabetes Background
- 11. “Folk in black turtlenecks and designer glasses working on small things like the Apple Watch” -Tim Brown No Formal Training in Design
- 13. “B”
- 14. #design #fail
- 16. #lazytigermother
- 21. 700+ students & 40 teachers
- 23. “Two videos recently impressed me with their use of illustration and narration to educate an audience about health…What interests me is how approachable and informative they are, regardless of the production value.” -Susannah Fox
- 24. B’s Trilogy Part 2: Ingredients and Food Handling
- 25. B’s Trilogy Part 3: Asthma
- 30. To integrate design thinking into the medical enterprise and to promote the participation of makers in the healthcare landscape To partner with patients and caregivers to create opportunities for participatory design, citizen science, and open science research To provide tools and technology- based systems for transforming the patient experience Education Research Clinical
- 31. Empathy PrototypeDefine Ideate Test Human-Centered Design ”An approach that puts human needs, capabilities, and behavior first, then designs to accommodate those needs, capabilities, and ways of behaving”
- 32. Participatory Design ”an approach to design attempting to actively involve all stakeholders in the design process to help ensure the result meets their needs and is usable”
- 33. Who’s the real expert?
- 35. Curricular Collaborations: Swift iOS programming Digital Game Design
- 36. Empathy Understand a problem before solving it
- 39. Prototype Sketch, draw, glue, code
- 40. Test Iterative Feedback from User
- 44. Design= Distraction from Health A critical tool for the creation of health
- 46. Maker Movement Do It Yourself (DIY) Learning by Doing Peer-to-Peer
- 53. “Being a maker is not taking the world as it is” -Dale Dougherty “The essential democratization of the technology has happened; once you put the tools in the hands of everybody, it liberates the ideas and creativity of so many people” -Chris Anderson
- 55. DIY = Expert Learning by doing = Maker Peer-to-Peer = Collaborator
- 58. Design/Maker Workshops Diabetes Education Design/Maker Workshops Apps Design by Teens Participatory Game Design in Diabetes Clinic
- 59. Design Insights We are all designers (patients/caregivers/HCPs) Design WITH and not FOR patients/caregivers by inviting them to the table Make design a part of the workflow Design with members of a different tribe Embrace the maker movement
- 60. Agenda The Maker Movement and Participatory Design The Nightscout Project Research (Ethnography, Survey, Secondary analysis of Social Media - University of Michigan IRB) Design and Making as a Healthcare Platform
- 65. Wrote Original code for CGM Twitter Twitter
- 66. Wrote Original code for CGM Twitter Blog Twitter
- 67. Wrote Original code for CGM Twitter Blog Contractor In India Elance.comTwitter
- 68. Wrote Original code for CGM Twitter Blog Contractor In India Elance.com "Hi the job was too simple I have already deployed it for you. You can pay whatever little amount that you may like to play. Elance is not allowing to bid less than $20" Twitter
- 69. Blog Wrote Original code for CGM Contractor In India Elance.com Facebook post Twitter Twitter “So, I saw her, she saw too right what this could do to change her life…so I actually went home that night and messaged xxx and said, can we set up another one”
- 70. Blog Wrote Original code for CGM Started CGM in the Cloud FB Group Contractor In India Elance.com Facebook post Twitter Twitter
- 75. #WeAreNotWaiting… …while our endocrinologist tries to assemble the disjointed pieces of the data puzzle …for regulators to regulate …for device manufacturers to innovate …for peace of mind that our children with type 1 diabetes are safe
- 76. “…organically a support group came out of the community [and] was basically working 24/7…Somebody would always be monitoring the Facebook page…” Technical Troubleshooting for Nightscout General Diabetes Technology Skin Rashes Blood Sugar Patterns and Management Issues with the School Nurse Endocrinologist Insurance
- 80. Italy UK Sweden Bulgaria Spain Canada Australia Finland Czech+Slovakia New Zealand Croatia Israel South Africa Hungary France Switzerland Belarus Japan Korea 18,000 + 7,710 = 25,710 US Int’l Poland Romania Denmark Portugal Turkey Russia Norway Brasil Germany
- 82. Open Source Code “What one person knows, everybody knows…So it’s travelling at the speed of light.”
- 83. Collaborative Innovation Network A cyberteam of self-motivated people with a collective vision, enabled by the Web to collaborate in achieving a common goal by sharing ideas, information, and work
- 84. Leadership Team
- 85. Features: 10 Apple Pie -> 152 Funnel Cake Amy Cowen Nightscout Product Roadmap Core Development Team
- 86. Support Team
- 87. 0 100 200 300 400 500 600 NewUsersbyPost Month-Year of first post NewThe End of Nightscout? New Members to FB group via 1st Post
- 94. Xdrip
- 98. 10.1 8.8 8.1 7.6 8.9 7.8 7.1 6.8 0.0 2.0 4.0 6.0 8.0 10.0 12.0 0-5 y 6-12 y 13-17 y ≥ 18 y Before NS After NS Self-reported HbA1c averageSelf-reported HbA1c average Excludes CGM users <6 months
- 99. A Maker Movement for Diabetes Patients/caregivers as lead innovators A Model for Personalized Medicine (Devices, wearables, mobile apps) Sharing of open source code through Github and sharing of knowledge through social media How do we translate this knowledge to research and care delivery?
- 100. Agenda The Maker Movement and Participatory Design The Nightscout Project Research (Ethnography, Survey, Secondary analysis of Social Media) Design and Making as a Healthcare Platform
- 101. Professional Design Participatory Design Human- Centered Design Maker Movement (Meta-Design) Healthcare Delivery & Biomedical Research
- 102. Meta-design (Gerhard Fischer) “Design for designers” Users become co-designers and co-developers The meta-designers design systems explicitly for evolution http://l3d.cs.colorado.edu/~gerhard/papers/2013/EUD.pdf
- 104. Meta-design Objectives Changes must seem possible Changes must be technically feasible (open systems) Benefits must be perceived Environments must support people’s actual tasks Barriers to sharing changes must be low
- 105. MD to Patient Passive Solitary Patient to Patient Active Collaborative Health
- 106. Valerie Castle, Ram Menon, Nancy Benovich Gilby, Emily Hirschfeld, Ashley Garrity, Matt Kenyon, Preciosa Choi, Sarah Clark, Peter Honeyman, Liz Kaziunas, Ben West, Dana Lewis, John Costik, James Wedding, Weston Nordgren, Ken Stack, CGM in the Cloud Community Twitter: @joyclee http://www.doctorasdesigner.com http://www.healthdesignby.us/ #makehealth It Takes a Virtual Village
- 107. Our Next Edge Talks August 5th Sue Haines Talent management September 2nd Maxine Craig Culture and Change
Hinweis der Redaktion
- B has his own blog now
- I posted the video on my blog
- -She broadcast it to the entire school just a day later
- -and it went a little bit viral among a community of pediatrician bloggers
- Susannah fox of the pew internet and american life projec
- And we ended up creating a trilogy of videos about ingredients and food handling
- And a third video about asthma medications.
- -I also made a low fidelity version, a paper booklet/nametag with links to the videos and more information, emergency contact numbers, and hospital information,
- -This is the future of healthcare: Patient as expert, maker, collaborator in the creation and production of health. This is bigger than the next blockbuster drug or the newest FDA-approved medical device. It’s patients creating with patients in a collaborative community. What I want is for healthcare to embrace this vision for the future.
- -But to get to the future of healthcare,we first have to overcome the culture of healthcare,
- -We are pairing patients with designers to create educational materials inspired by the patient experience like digital comic books
- -And we are trying to create a culture of design in healthcare, which treat designs, not as a distraction from health problems, but as a critical tool for the creation of health.
- http://coloradomakerhub.org/2014/02/17/is-it-a-hackerspace-makerspace-techshop-or-fablab/
- Will look more like this, a patient to pt, active, and collaborative
- And we began to draw the connections between the maker movement and participatory design
- And we began to draw the connections between the maker movement and participatory design
- -This is the future of healthcare: Patient as expert, maker, collaborator in the creation and production of health. This is bigger than the next blockbuster drug or the newest FDA-approved medical device. It’s patients creating with patients in a collaborative community. What I want is for healthcare to embrace this vision for the future.
- Get rid of the numbers and then
- And maybe this model could translate to the clinic experience. Right now clinic is a lonely solitary place where patients and caregivers are isolated inside rooms for 2-3 hours with nothing to do and no opportunity to meet and learn from peers. So right now we are in the process of prototyping a maker clinic, which brings together the experts in diabetes, encourages them to create and make for their health, and allows them mutually share their knowledge and wisdom with their peers. So what’s the ROI in making? Why might it make a difference? I wan to share you a story of making that has transformed the type 1 diabetes community.